FEGA Portugal

Privacy Policy

Definition

The Service consists of the storage of data under BioData.pt’s FEGA Node, in Portugal.

This privacy policy will explain how The Service uses the personal data we collect from you when you use our website.

Topics

What data do we collect?

The Service collects the following data:

  • E-mail
  • EGA ID
  • Country
  • Name
  • Institution

How do we collect your data?

You directly provide The Service with most of the data we collect. We collect data and process data when you:

  • Perform a dataset submission to the archive.
  • Perform a dataset retrieval from the archive after access approval by the respective Data Access Committee.

How will we use your data?

The Service collects your data so that we can:

  • Keep track of which submission was performed by which user.
  • Security and audit purposes to track all data transfers of files under controlled access regime due to their sensitive content (human genome phenome information).
  • The Service will share your data with our partner(s) in order to facilitate authentication and authorization functionality.

How do we store your data?

EGA ID is securely stored in the database at the IST server. This information is stored permanently, but can be removed in accordance with the right to erasure, described below.

What are your data protection rights?

The Service would like to make sure you are fully aware of all of your data protection rights. Every user of The Service is entitled to the following:

The right to access – You have the right to request The Service for copies of your personal data. We may charge you a small fee for this service.

The right to rectification – You have the right to request that The Service correct any information you believe is inaccurate. You also have the right to request The Service to complete the information you believe is incomplete.

The right to erasure – You have the right to request that The Service erase your personal data, under certain conditions.

The right to restrict processing – You have the right to request that The Service restrict the processing of your personal data, under certain conditions.

The right to object to processing – You have the right to object to The Service’s processing of your personal data, under certain conditions.

The right to data portability – You have the right to request that The Service transfer the data that we have collected to another organization, or directly to you, under certain conditions.

If you make a request, we have one month to respond to you. If you would like to exercise any of these rights, please contact us.

Cookies

Cookies are text files placed on your computer to collect standard Internet log information and visitor behavior information. When you visit our websites, we may collect information from you automatically through cookies or similar technology

For further information, visit https://allaboutcookies.org.

How to manage cookies?

You can set your browser not to accept cookies, and the above website tells you how to remove cookies from your browser. However, in a few cases, some of our website features may not function as a result.

How do we use cookies?

Public-facing pages of this website do not currently employ cookies.

Privacy policies of other websites?

The Service website contains links to other websites. Our privacy policy applies only to our website, so if you click on a link to another website, you should read their privacy policy.

Changes to our privacy policy

The Service keeps its privacy policy under regular review and places any updates on this web page. This privacy policy was last updated on 6 September 2023.

How to contact us?

If you have any questions about The Service’s privacy policy, the data we hold on you, or you would like to exercise one of your data protection rights, please do not hesitate to contact us.

How to contact the appropriate authority?

Should you wish to report a complaint or if you feel that The Service has not addressed your concern in a satisfactory manner, you may use the following contacts: